Hello again! Dysautonomia Awareness Month is coming to an end which calls for a much needed post. I have been overly busy with school, life, and homework on a daily basis while juggling doctors appointments and testing. My latest doctor's appointment with Dr. Coleby was this past Thursday. My heart rate is finally under control again! YAY! However, with the increasing dose of beta blocker it has caused me to get severe headaches, blood pooling in my legs, and more fatigue. He is switching around my meds and hopefully this will be the cure for me this time! He also did some blood work which showed my iron levels are particularly low. In that case, I am going to be receiving an Iron infusion within the next few days (waiting on insurance to approve). The thought of putting artificial iron in my blood is a scary thought for me. But if it increases my energy level I am more than happy to give it a try. It will be 4 weeks ago on Friday since I got surgery to get a benign cyst removed. Here is a picture from before the surgery!
Help raise awareness of POTS, a common form of dysautonomia! Increased awareness means reduced diagnostic delays, and better healthcare for patients after they are diagnosed. Learn more about POTS: www.dysautonomiainternational.org/POTS It took me over 7 years to get diagnosed, no one should have to wait that long.
YOU CAN MAKE A DIFFERENCE!
You can make a different in the lives of POTS patients today, by contributing to the POTS Research Fund:
www.dysautonomiainternational.org/POTS-Fund.
www.dysautonomiainternational.org/POTS-Fund.
