School: It takes me 5 times longer to get studying done than other people. Brain fog gets the best of me and I really have to focus hard and re-read information multiple times to understand and retain it.
My heart rate is continuing to increase which isn't good. It is getting too high which means my heart is working too hard which is why I am so tired all the time and sleep for 11 hours each night. Dr. Coleby is switching my beta blocker to a different one to see if it will bring my heart rate down. He could have increased the Propranolol but it will just make me more tired. So he is switching me to a beta blocker called Nadadol.
I also was put on a medication called Florinef a couple weeks ago, it helps my kidneys retain water better. A side effect of Florinef is migraine headaches. In the last 2 weeks I have had a headache everyday. Not just any headache it is a migraine headache. These headaches make it 100 times harder to study or pay attention in class. So Dr. Coleby decided to cut my dosage in half to see if that will help with the side effect of the headaches.
I also will be starting Physical Therapy for my joint pain and hyper mobility. The barometric pressure with changing weather just kills my neck, shoulders, knees, and ankles. It makes my symptoms worse! Ugh! The joint and muscle pain has increased since 6 months ago which is unfortunate. I hope physical therapy helps with the neck and shoulder pain which is very bothersome.
For the most part I am doing so much better than I was 6 months ago. I am able to actually get out of bed! I still need to plan ahead for activities and make sure I get a proper amount of rest and fluids in order to still have a college life! I will try to do better about posting! :)